Ankylosing spondylitis (AS) is an invisible illness: it’s hard for people who don’t have it to picture what life is like for those who do. So This AS Life had an idea – and we asked for your help.
Through our Instagram account, we asked you to describe different aspects of your life with ankylosing spondylitis. Next, we took your words, added pictures and put them together in this article.
We want to make AS a visible illness. Because the more people understand AS, the easier life gets for the people who have it. So share this article with your friends and loved ones if you feel the pictures echo your life with AS.
First, we asked how you would define your AS
Chronic fatigue, naturally, was a common topic
But there were lots of other symptoms too
Hearing how people who don't have AS show their misconceptions about AS was a real highlight
As were the posts on the positive attitude to life with AS
And finally…we thought this post helped sum up life with AS
This article was written by one of the resident experts at ThisASLife.com. A social site helping the whole AS community to: Learn. Share. Inspire. Discuss.