For US residents only.

Find patient support groups


This AS Life isn't the only place to get good advice about living with AS. There are various AS charities and support groups out there. 

Find what's available for you from the list below.




(800) 777-8189 Hotline

The Spondylitis Association of America (SAA) is a nonprofit organization founded in 1983 to address the needs of people affected by spondyloarthritis. Since that time, SAA has been at the forefront of the fight to promote medical research, educate both the medical community and general public and advocate on behalf of the people we serve.

SAA receives no government funding and relies on the generous donations from individuals to create and maintain the programs and services aimed at improving the futures of the 2.7 million Americans affected by spondyloarthritis.

SAA is committed to fiscal accountability and transparency at all times and is consistently rated at the top of the scales by nonprofit watchdog groups and charity evaluators.

But what sets us apart from other organizations is more than our efficiency and work ethic; it’s the people who work with us to achieve our goals. From our small staff of dedicated professionals at our Van Nuys, CA headquarters to our all-volunteer Board of Directors to our internationally recognized Medical & Scientific Advisory Board, SAA is comprised of a lean group of dedicated experts whose aim is to change the landscape of spondyloarthritis in the US for the better.


CreakyJoints®, now in its 18th year, is the go-to source for more than 100,000 arthritis patients and their families world-wide who are seeking education, support, advocacy and patient-centered research. Co-founded in 1999 by arthritis patient Seth Ginsberg and social entrepreneur Louis Tharp, CreakyJoints is part of the Global Healthy Living Foundation, whose mission is to improve the quality of life for people with chronic illness. For more information and to become a member (for free), visit

Novartis Pharmaceuticals Corporation has provided third-party links for the benefit of its users. They are not formally affiliated with any of the listed organizations on this website. As such, the Patient Support Groups listed should not be viewed as partners, affiliates or considered to endorse any of the current or future content found on or the products and services provided by Novartis Pharmaceuticals Corporation.

Can't see your group?

If you know a US-based AS group that isn’t listed, please get in touch and let us know. Better still, if you’re a member of a group, get in contact about ways we can work together to help improve This AS Life.